Corporations
make a difference

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Treatment

The ARSACS Foundation is now
working with pharmaceutical companies
to develop a treatment for ARSACS

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Several research projects
are currently funded
by the Foundation
in Canada and abroad

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The Ataxia gene can be
passed through many generations
without manifesting any symptoms

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We need your support
to pursue research that heals

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Latest News

June

22

2015
ARSACS study of Algerian patients
A molecular and clinical study of a cohort of 110 Algerian patients with ARSACS has been published on June 12,2015 in the BMC Medical Genetics. See Algerian study.
June

21

2015

The Foundation to announce the projects to be funded in 2015-2016

The Foundation will announce in July the selected research projects that will be funded in 2015-2016. The Foundation has received 14 research proposals as part of its funding research program.

June

16

2015

Opportunity to share the most recent research results

The meeting of the team of researchers “ARSACS – CIHR” held on June 3 provided an opportunity to share the most recent research results from each lab. See ARSACS meeting.

June

12

2015

Regular training has a positive impact on ARSACS patients

In February 2015,the Foundation funded a study conducted by Olivier Audet to determine the impact of a regular training program on ARSACS patients. The study shows a significant improvement for 11 of the 13 evaluations of physical fitness and the functional ability. See report(French version only) Mémoire.

June

08

2015

Preclinical therapeutic trial

The preparation required for a preclinical trial with a therapeutic molecule coming from the United States will begin soon. This test will be done on ARSACS mice in Montreal laboratories. This will be the 2nd preclinical trial funded by the Foundation. The results of the first trial are still to come.

May

28

2015

Several meetings in June

Several meetings will be held in June to review the research progress : working meeting in Montreal with the ARSACS researchers (June 3); meeting to hire a scientific director (June 4)); Board of Directors meeting (June 15).

May

24

2015

New ARSACS findings to be presented at the Neuroscience 2015 meeting

Dr. Alanna Watt, member of the ARSACS research team, will be presenting the new ARSACS findings as a poster at the Neuroscience 2015 meeting. The annual meeting of the Society of Neuroscience will be held in October 2015 in Chicago. See New findings abstract.


Who We Are


What We Do

Funding
Funding
process
Team
Research
Research
process
Discovery
Trials
Trials

The Ataxia Charlevoix-Saguenay Foundation is a charitable organisation supported entirely by private donations. Different events are organised during the year by families, friends and community groups to raise funds to support research on ARSACS.


Since its creation, the Foundation has been successful in assembling a great team at all levels of the organisation (board, advisors, researchers, contributors and partners). The researchers are well respected in their field and have an international reputation for excellence.


The main research objective of the Ataxia Charlevoix-Saguenay Foundation is to develop a treatment for ARSACS. Several research projects on ARSACS are currently funded by the Foundation in Canada and abroad. Over 98% of the funds raised are allocated to research.


The main research objective of the Ataxia Charlevoix-Saguenay Foundation is to develop a treatment for ARSACS.


The first therapeutic tests on transgenic ARSACS mice conducted in the Spring 2013 were very positive. For a short study, the tests demonstrated some beneficial effect on the physical performance of the mice. Discussions are underway to determine the next step.