The ARSACS Foundation is now
working with pharmaceutical companies
to develop a treatment for ARSACS

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Several research projects
are currently funded
by the Foundation
in Canada and abroad

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The Ataxia gene can be
passed through many generations
without manifesting any symptoms

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Corporations make a difference

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We need your support
to continue our research
because research heals

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"Dîner des Producteurs"

annual fundraiser for ARSCAS research

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Latest News

Nov 14,2015- The Foundation to finance one more research project
The Foundation is pleased to announce that it will fund Dr Francesca Maltecca's research project "Investigating the Link Between Impaired Mitochondrial Trafficking and Calcium Dysregulation in SACS/Purkinje Neurons". Dr Maltecca is from the Universita Vita-Salute(Milan,Italy).
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Nov 09,2015- Dr. Kalle Gehring's article published in PLOS Journal

Dr. Kalle Gehring's Article "High-Throughput Screening for Ligands of the HEPN Domain of Sacsin" published in the PLOS (Public Library of Science) in the September edition. Dr. Kalle Gehring is a member of the ARSACS research team. PLOS is a non-profit publisher and advocacy organisation funded to accelerate progress in science and medicine.


Oct 18,2015- Invitation to the "Dîner des Producteurs"

Invitation to the 9th edition of "Le Dîner des Producteurs". The annual major fundraising event will be held this year on Thursday December 3,2015. Reserve your table now by completing the following form Reservation.


Oct 13, 2015- ARSACS project "PREPARE" selected

The ARSACS project entitled "PREPARE" and led by Dr. Matthis Synofzik (Germany) has been selected for funding as part of the international competition E-Rare-3 European Research Projects on Rare Diseases. A total of 234 projects were submitted last February and 19 were retained. The "PREPARE" project involves a consortium of ARSACS researchers from several countries (Canada, Germany, Netherlands, France, Italy and Turkey). Congratulations to Dr. Synofzik, Dr. Bernard Brais and to the consortium partners for this success!


July 16,2015- Dr. Slaven Erceg's project in several spanish media.

Dr. Slaven Erceg's research project, one of the projects funded by the Foundation for the 2015-2016 fiscal year, has received coverage in several spanish media. See Press release,or Communidad,or Infosalus, or Valencia.


July 11,2015- $1.4M allocated to eleven ARSACS research projects for 2015-2016

The Foundation is pleased to announce that eleven research projects have been selected to share over $1.4M in research grants for its 2015-2016 research program. All applications received were evaluated by the Scientific Committee. The Foundation would like to thank all candidates who submitted a proposal.

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July 7,2015- Meeting with a pharmaceutical company

On June 23, a meeting was held in Montreal between a pharmaceutical company and the ARSACS research team with respect to the outcome of the preclinical trial phase 11 currently underway on the ARSACS mice at the Douglas Institute. The complete results should be known in November 2015. See Meeting Summary.