Corporations
make a difference

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Treatment

The ARSACS Foundation is now
working with pharmaceutical companies
to develop a treatment for ARSACS

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Several research projects
are currently funded
by the Foundation
in Canada and abroad

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The Ataxia gene can be
passed through many generations
without manifesting any symptoms

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We need your support
to pursue research that heals

How can you help?

Donate
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Latest News


July

27

2014

Hiring of a project manager

As a follow-up to a meeting held on July 14, 2014 with some Board members, the Foundation will hire a project manager as soon as possible. The project manager will be responsible to accelerate the overall drug development activities for ARSACS.

July

22

2014

Third International Symposium on ARSACS

The third international symposium on ARSACS will be held on November 12 & 13 2014 in Montreal. Several speakers expert in the subject will be participating at the event. You can register now.

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July

15

2014

2014 Dîner des Producteurs

Mr.Jacques Bougie, former president and CEO of Alcan, has accepted to be the honorary president of the 2014 Dîner des Producteurs. The date of the event should be confirmed shortly.

July

03

2014

Perce-Neige Daycare and Félix Laberge's family raise $2841

Throughout the year, the Perce-Neige daycare sold various items made ​​by the students, such as key chains, Christmas cards and plants. Thanks to the involvement of the parents who have strongly participated in the project, the daycare exceeded its initial goal and raised $ 2026. In addition, the family of Felix who is suffering from ARSACS raised $ 815 by selling Christmas logs. We thank the community of Pont-Rouge and the family of Felix who have responded to the call.

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June

28

2014

Research funding at any time

As part of its ARSACS research funding program, the Foundation of Ataxia Charlevoix-Saguenay has decided that it will consider all grant applications related to research on ARSACS. At any time, researchers interested in pursuing this funding opportunity may contact the Foundation by email at ataxia@arsacs.com.

June

24

2014

Outcome of the Board meeting

At the meeting of the Board held on 9 June in Montreal, there was discussion on the new cell model being developped and its potential use for screening large banks of therapeutic molecules.

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Who We Are


What We Do

Funding
Funding
process
Team
Research
Research
process
Discovery
Trials
Trials

The Ataxia Charlevoix-Saguenay Foundation is a charitable organisation supported entirely by private donations. Different events are organised during the year by families, friends and community groups to raise funds to support research on ARSACS.


Since its creation, the Foundation has been successful in assembling a great team at all levels of the organisation (board, advisors, researchers, contributors and partners). The researchers are well respected in their field and have an international reputation for excellence.


The main research objective of the Ataxia Charlevoix-Saguenay Foundation is to develop a treatment for ARSACS. Several research projects on ARSACS are currently funded by the Foundation in Canada and abroad. Over 98% of the funds raised are allocated to research.


The main research objective of the Ataxia Charlevoix-Saguenay Foundation is to develop a treatment for ARSACS.


The first therapeutic tests on transgenic ARSACS mice conducted in the Spring 2013 were very positive. For a short study, the tests demonstrated some beneficial effect on the physical performance of the mice. Discussions are underway to determine the next step.