Treatment

The ARSACS Foundation is now
working with pharmaceutical companies
to develop a treatment for ARSACS

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Several research projects
are currently funded
by the Foundation
in Canada and abroad

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The Ataxia gene can be
passed through many generations
without manifesting any symptoms

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We need your support
to pursue research that heals

How can you help?

Donate

Latest News


April

08

2014

Discussion with a biotech company

A meeting will be held on April 24 with a biotech company to investigate possible ARSACS research collaboration. Stay tuned.

April

02

2014

Wine and cheese fundraising event

The Club Richelieu Alma will support this year the Ataxia Charlevoix-Saguenay Foundation in its effort to raise funds for research. A wine and cheese event will be held on Saturday April 26, 2014 at 5:00pm at the Jacques Gagnon complex -room Piékouagami. The cost is $100 per person. For more information, please contact Mr.Serge Trudel at 418-487-0659.

March

27

2014

Meeeting with pharmaceutical cie

Meeting on April 17 in Montreal between the representatives from the Foundation and from a pharmaceutical company. The objective is to share the progress of the ARSACS research project and hopefully begin collaboration. Details to come.

March

26

2014

National Ataxia Foundation Conference in Las Vegas

Summary prepared by Dr. Brais who participated with Dr. Larivière and Dr. McPherson at the National Ataxia Foundation held in Las Vegas from March 18-21.

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March

03

2014

E-Rare 2 competition

The ARSACS research team participates in the E-Rare 2 competition on rare disease to obtain financing for the research project.

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Fev

26

2014

Annual research grants

The Foundation will award this year again annual research fellowships (maximum of $100,000) that will lead to a treatment of ARSACS.

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Who We Are


What We Do

Funding
Funding
process
Team
Research
Research
process
Discovery
Trials
Trials

The Ataxia Charlevoix-Saguenay Foundation is a charitable organisation supported entirely by private donations. Different events are organised during the year by families, friends and community groups to raise funds to support research on ARSACS.


Since its creation, the Foundation has been successful in assembling a great team at all levels of the organisation (board, advisors, researchers, contributors and partners). The researchers are well respected in their field and have an international reputation for excellence.


The main research objective of the Ataxia Charlevoix-Saguenay Foundation is to develop a treatment for ARSACS. Several research projects on ARSACS are currently funded by the Foundation in Canada and abroad. Over 98% of the funds raised are allocated to research.


The main research objective of the Ataxia Charlevoix-Saguenay Foundation is to develop a treatment for ARSACS.


The first therapeutic tests on transgenic ARSACS mice conducted in the Spring 2013 were very positive. For a short study, the tests demonstrated some beneficial effect on the physical performance of the mice. Discussions are underway to determine the next step.