There is still an opportunity to complete the PROSPAX survey. The deadline has been extended to Sunday January 31, 2021. So please take five minutes of your time to have your voice heard and be well represented in the research. Thank you very much if you have already completed the survey. It is very appreciated!
Invitation to a free online presentation with Dr. Hébert on Thursday January 21, 2021
Invitation to individuals affected with ARSACS, their caregivers and health professionals to a free online presentation on Thursday January 21, 2021, 1:30pm-2:30pm “Abnormal muscle co-contraction in the lower limbs: a factor limiting the mobility of patients with Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay (ARSACS)”. The research results and avenues for intervention will be presented by Dr. Hébert and Olivier Audet. …
Importance of balancing Sacsin in ARSACS
“The importance of balancing Sacsin protein levels in ARSACS” – the article written by Dr. Ambika Tewari and edited by Larissa Nitschke was published in SCA Source.
ARSACS case in Iran
Individuals affected by ARSACS can be found all around the world. Recently, an ARSACS case had been reported in Iran. Article published by Frontiers in Genetics in December 2020.
“Docosahexaenoic acid in ARSACS: observations in 2 patients” – BMC Neurology
Article Docosahexaenoic acid in ARSACS: observations in 2 patients published in BMC Neurology. The article does not necessarily reflect the views and positions of the Foundation. It engages solely the author. The Foundation does not in any way guarantee the exactitude and reliability of the information contained in this publication. The Foundation is not responsible for the use that could …
Your donation can change lives
Help us continue research on ARSACS. Every donation counts. Donate. Thank you and Happy Holidays!
A unique opportunity to have your voice heard by researchers in the PROSPAX project
The Ataxia Charlevoix-Saguenay Foundation is one of the 3 patient advocacy organisations participating in the PROgression chart of SPAstic ataXias (PROSPAX) research project. PROPSPAX, launched in September 2020, is a novel collaborative effort between several neurologists across Canada and Europe. Project description. The PROSPAX survey provides an unique opportunity to have your voice heard by researchers, to make sure that …
$620 raised for ARSACS research to celebrate Sharline’s birthday !
Thank you to the donors who celebrated Sharline’s birthday by giving to ARSACS research.
Launch of the fundraising campaign – $1.6M objective
This year, the Diner des Producteurs, the major fundraising event for ARSACS research, did not take place due to the pandemic. The Foundation cannot resign itself to terminate medical research funding. Accordingly, the Foundation is launching today its 2020-2021 fundraising campaign with a $1.6 million objective to fund high-potential research projects as well as a clinical trial of a repurposed …
Congratulations to Dr. Jacques Michaud and Dr. Guy Rouleau !
Dr. Jacques Michaud is the recipient of the prestigious Pediatric Academic Leadership Clinician Investigator Award 2020. Dr. Guy Rouleau has been appointed to the Order of Canada for his excellence in clinical care and research. Dr. Rouleau and Dr. Michaud are members of the Foundation’s Board of Directors.
