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Invitation to a free online presentation with Dr. Hébert on Thursday January 21, 2021

In Latest News by ARSACS

Invitation to individuals affected with ARSACS, their caregivers and health professionals to a free online presentation on Thursday January 21, 2021, 1:30pm-2:30pm “Abnormal muscle co-contraction in the lower limbs: a factor limiting the mobility of patients with Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay (ARSACS)”. The research results and avenues for intervention will be presented by Dr. Hébert and Olivier Audet. …

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ARSACS case in Iran

In Latest News by ARSACS

Individuals affected by ARSACS can be found all around the world. Recently, an ARSACS case had been reported in Iran. Article published by Frontiers in Genetics in December 2020.

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“Docosahexaenoic acid in ARSACS: observations in 2 patients” – BMC Neurology

In Latest News by ARSACS

Article Docosahexaenoic acid in ARSACS: observations in 2 patients published in BMC Neurology. The article does not necessarily reflect the views and positions of the Foundation. It engages solely the author. The Foundation does not in any way guarantee the exactitude and reliability of the information contained in this publication. The Foundation is not responsible for the use that could …

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A unique opportunity to have your voice heard by researchers in the PROSPAX project

In Latest News by ARSACS

The Ataxia Charlevoix-Saguenay Foundation is one of the 3 patient advocacy organisations participating in the PROgression chart of SPAstic ataXias (PROSPAX) research project. PROPSPAX, launched in September 2020, is a novel collaborative effort between several neurologists across Canada and Europe. Project description. The PROSPAX survey provides an unique opportunity to have your voice heard by researchers, to make sure that …

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Launch of the fundraising campaign – $1.6M objective

In Latest News by ARSACS

This year, the Diner des Producteurs, the major fundraising event for ARSACS research, did not take place due to the pandemic. The Foundation cannot resign itself to terminate medical research funding. Accordingly, the Foundation is launching today its 2020-2021 fundraising campaign with a $1.6 million objective to fund high-potential research projects as well as a clinical trial of a repurposed …

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Congratulations to Dr. Jacques Michaud and Dr. Guy Rouleau !

In Activities by ARSACS

Dr. Jacques Michaud is the recipient of the prestigious Pediatric Academic Leadership Clinician Investigator Award 2020. Dr. Guy Rouleau has been appointed to the Order of Canada for his excellence in clinical care and research. Dr. Rouleau and Dr. Michaud are members of the Foundation’s Board of Directors.