Article published in the Quotidien. Nicolas Claveau, affected by ARSACS , has the intention to go around the Lac St Jean on an adapted bike to support the ARSCS research. Good luck Nicolas !
The next meeting of the Foundation’s Board of directors will be held on Thursday June 4, 2020 ( via Zoom meeting ) .
Thank you to all of you who celebrated Louise’s birthday by contributing to ARSACS research. Each donation is key to continue research on ARSACS.
A personal thank you note from Katherine Samson et Steve Bourget for your contribution. ( French version only )
Congratulations and thank you to Katherine Samson and her team for this great success! $25,000 raised by selling 5,000 “Ça va bien aller” stickers. A special thank you to Mrs. Louise Lajoie, real estate agent at Remax Saguenay-Lac-Saint-Jean, who played a key role in this fundraising activity.
The Foundation, a financial partner with the Canadian Institutes of Health Research, is pleased to confirm that the “European Joint Programme on Rare Diseases 2020” (EJP-RD JTC2020) competition is moving on according to its original timelines even with the current COVID-19 pandemic.
Special thanks to the team: Katherine, Steve, Nadine, a real estate agent from Lac St-Jean, Pro-Style Lettrage company and the supporters who have purchased their sticker. Lets continue to encourage Katherine to reach the objective of 5000 stickers. Help us by ordering your “Ca va bien aller” sticker via Katherine’s Facebook page .
Thank you to those anonymous donors who celebrated Stephanie’s birthday by giving to the ARSACS research.
Congratulations to Katherine Samson, mother of two children with ARSACS, for her great initiative! More than 400 stickers “Ça va bien aller” sold already to finance ARSACS research. You can order your $5 sticker via Katherine’s Facebook page. Thanks to Katherine and to all of you for supporting ARSACS research.
Patients from 21 different countries are registered in the International ARSACS Patient Registry. ARSACS is around the world. See map of the country of the registered patients.