About Our Research
Ataxia Charlevoix-Saguenay Foundation
In 2006, the Foundation was created and funded the first research to be undertaken since the identification of the Ataxia gene in 2000. It was crucial to begin research in order to discover a treatment for Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay (ARSACS).
Since its creation, the Foundation has funded several research projects related to this neurological disorder. The Foundation is a charitable organization with no employees and is supported entirely by private donations and volunteers who support the cause. The total administration costs are less than 1% of the funds raised which allow almost all the funds to be totally dedicated to research.
To further encourage and accelerate the development of a treatment for ARSACS, the Foundation provides grants and opportunities to researchers.The research grant could be as high as $100,000 for a 12 month period and could be renewed for a second year. It should be noted that the grant funding from the Foundation cannot be used to cover indirect costs . All applications for research grants are evaluated by the Scientific Committee of the Ataxia of Charlevoix-Saguenay Foundation.
See Financing Offer and ARSACS Appendix