The Foundation is one of the 3 patient advocacy organisations participating in the integrated multimodal progression chart in spastic ataxias project (PROSPAX). Also, Dr. Brais and Dre. Gagnon, ARSACS leader researchers , will be part of this project.
The consortium composed of all major European ataxia and spastic paraplegia centers was created to increase the sizes of two disease-specific cohorts –the most prevalent SPAX, ARSACS and SPG7. These cohorts will serve to harmonize and standardize clinical assessments, analyze biomaterials and brain imaging, and collect molecular and clinical measures.