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Congratulations to Dr. Jacques Michaud and Dr. Guy Rouleau !

In Activities by ARSACS

Dr. Jacques Michaud is the recipient of the prestigious Pediatric Academic Leadership Clinician Investigator Award 2020. Dr. Guy Rouleau has been appointed to the Order of Canada for his excellence in clinical care and research. Dr. Rouleau and Dr. Michaud are members of the Foundation’s Board of Directors.

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Invitation to a free online presentation with Dr. Gentil on November 5th

In Activities by ARSACS

Special invitation to individuals affected with ARSACS, their caregivers and health professionals to a free online presentation on November 5th, 2020. Dr. Gentil will present in layman’s terms his research project « Research on Gene and Replacement Therapies to Treat ARSACS». Register in advance. Note: The same conference will be also in French on November 19th (see the French site …

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An excellent source of information on ARSACS

In Activities by ARSACS

An excellent source of information on ARSACS published in the GeneReviews. GeneReviews is an online database containing peer-reviewed articles that describe specific diseases. It was established in 1997 by the University of Washington in the US.

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Invitation to the virtual conference “L’Odyssée thérapeutique des maladies rares”

In Activities by ARSACS

“Comment le patient peut-il, du diagnostic à l’innovation, faciliter son odyssée thérapeutique?” Invitation to all. Note that the free visioconference, organized by the Centre de recherche Centre Hospitalier Université de Montréal and les Hospices Civils de Lyon, is in French only and will be held on November 4, 2020. Several guest speakers will share their experience. For more information concerning …

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“It is becoming increasingly clear that in patients with ARSACS, the presence of inappropriate knee cocontractions is a major factor in mobility restrictions.”

In Activities by ARSACS

According to Dr. Luc J. Hébert’s interim report , “it is becoming increasingly clear that in patients with ARSACS, the presence of inappropriate knee cocontractions is a major factor in mobility restrictions.” Dr. Hébert is the researcher responsible for the project “Caractérisation des déficiences musculaires associées aux difficultés à la marche et aux transferts chez des personnes atteintes d’ARSACS ; …