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Congratulations! Objective met – $25,000 raised for ARSACS research

In Activities by ARSACS

Congratulations and thank you to Katherine Samson and her team for this great success! $25,000 raised by selling 5,000 “Ça va bien aller” stickers. A special thank you to Mrs. Louise Lajoie, real estate agent at Remax Saguenay-Lac-Saint-Jean, who played a key role in this fundraising activity. Interesting, right? Share with your friends & followers / Intéressant, non? Partagez avec …

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EJP-RD JTC2020 competition maintained even with the COVID-19 pandemic

In Activities by ARSACS

The Foundation, a financial partner with the Canadian Institutes of Health Research, is pleased to confirm that the “European Joint Programme on Rare Diseases 2020” (EJP-RD JTC2020) competition is moving on according to its original timelines even with the current COVID-19 pandemic. Interesting, right? Share with your friends & followers / Intéressant, non? Partagez avec vos amis:

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More than 2000 “Ça va bien aller” stickers already sold to support ARSACS research

In Activities by ARSACS

Special thanks to the team: Katherine, Steve, Nadine, a real estate agent from Lac St-Jean, Pro-Style Lettrage company and the supporters who have purchased their sticker. Lets continue to encourage Katherine to reach the objective of 5000 stickers. Help us by ordering your “Ca va bien aller” sticker via Katherine’s Facebook page . Interesting, right? Share with your friends & …

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“Ça va bien aller” – More than 400 stickers sold already to support ARSACS research

In Activities by ARSACS

Congratulations to Katherine Samson, mother of two children with ARSACS, for her great initiative! More than 400 stickers “Ça va bien aller” sold already to finance ARSACS research. You can order your $5 sticker via Katherine’s Facebook page. Thanks to Katherine and to all of you for supporting ARSACS research. Interesting, right? Share with your friends & followers / Intéressant, …

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ARSACS patients around the world

In Activities by ARSACS

Patients from 21 different countries are registered in the International ARSACS Patient Registry. ARSACS is around the world. See map of the country of the registered patients. Interesting, right? Share with your friends & followers / Intéressant, non? Partagez avec vos amis: