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ARSACS ODV raising funds for ARSACS research

In Activities by ARSACS

On the occasion of World Ataxia Day on  September 25, the ARSACS Organizzatione Di VoLontariato (ARSACS ODV) launched a fundraising campaign in Europe to help finance ARSACS research projects.   The organisation of volunteers, created in December 2018 in Milan, works very closely with the Foundation. Thank you for your support. Interesting, right? Share with your friends & followers / …

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Note to researchers and pharmaceutical companies – Both models of ARSACS transgenic mice now available at the Jackson Laboratory.

In Activities by ARSACS

Both ARSACS transgenic mouse models, the Sacs Knock Out mouse (# 033221) and the Sacs Knock In R272C mouse (# 033385), are now available for sell on the Jackson Laboratory website www.jax.org. Thanks to the financial support of the Ataxia Charlevoix-Saguenay Foundation, the mice generated and characterized by the ARSACS researcher team demonstrate similarities to the disease found in humans …

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Visit of the IRCI and the ARSACS project

In Activities by ARSACS

On June 11th, thanks to Manon Valiquette, Sonia Gobeil representing the Foundation had the pleasure of visiting the Institute for Research in Immunology and Cancer (IRCI) in Montreal and discovering extraordinary people who are very passionate about their work. Their ARSACS project consists in optimizing active molecules aimed at producing a reversal of the ARSACS phenotype in an In Vivo …

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Working together to achieve our common goals

In Activities by ARSACS

The acronym “ARSACS” enters the life of Susanna de Luca and Paolo Arrigoni when their young child was diagnosed with ARSACS. Paolo joined the Board of Directors of the Ataxia Charlevoix-Saguenay Foundation in 2018 and, after having participated in the international symposium on ARSACS in Montreal, concluded that a point of reference and support was necessary in Europe, especially since …

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Dr. Brais at the 6th International Meeting on Spastic Paraparesis and Ataxia

In Activities by ARSACS

Dr. Brais will be presenting “New insights on ARSACS lead to a search for candidate compounds“ at the 6th International Meeting on Spastic Paraparesis and Ataxia on September 20-21 2019 in Nice, France. The program includes plenary talks from leaders in the field of spinocerebellar diseases (dominant and recessive forms of cerebellar ataxias and spastic paraplegias) Interesting, right? Share with …