See Invitation for the Zoom link to the virtual free conference “Abnormal muscle co-contraction in the lower limbs: a factor limiting the mobility of patients with Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay (ARSACS)” on Thursday, January 21 at 1:30pm.
Save the date Thursday, November 5, 2020- Diner des Producteurs
The Diner des Producteurs, annual fundraising event for ARSACS research, will be held in Montreal on Thursday, November 5, 2020. Reserve the date.
A great success ! $1.4 Million raised to continue research on Ataxia of Charlevoix-Saguenay
A great success ! $1.4 million net raised for research for Ataxia of Charlevoix-Saguenay at the 13th edition of the Diner des Producteurs . 357 guests attended the annual fundraising event held in Montreal on November 7, 2019. “On behalf of the persons affected with ARSACS and their families, I thank you for your great collective contribution” Jean Groleau, co-founder …
ARSACS Donation On Line now available
Now you have the option of doing your ARSACS donation on line. An easy, simple and secure way to support the ARSACS research. Help us finding a treatment, Donate.
Funding Dr. Schwarz’s ARSACS research project
“Is SARM1 a therapeutic target for ARSACS?” another research project funded by the Foundation this year. Dr. Thomas Schwarz is at the Dept of Neurobiology at the Harvard Medical School in Boston.
Another ARSACS research project financed by the Foundation
The Ataxia Charlevoix-Saguenay Foundation is pleased to announce that it will finance Dr. Walid Houry ‘s ARSACS research project “Towards the Structural Determination of Sascsin” for a 2 year period. Dr. Houry is from the University of Toronto.
ARSACS ODV raising funds for ARSACS research
On the occasion of World Ataxia Day on September 25, the ARSACS Organizzatione Di VoLontariato (ARSACS ODV) launched a fundraising campaign in Europe to help finance ARSACS research projects. The organisation of volunteers, created in December 2018 in Milan, works very closely with the Foundation. Thank you for your support.
Eight major innovative research projects funded for 2019-2020
The Ataxia Charlevoix-Saguenay Foundation has received several innovative research proposals again this year. The Foundation would like to thank the applicants for their interest in the Ataxia Charlevoix-Saguenay and for the high quality of their submissions. 8 major projects will be funded for 2019-2020 with the goal of developing a treatment for the Ataxia Charlevoix-Saguenay.
Note to researchers and pharmaceutical companies – Both models of ARSACS transgenic mice now available at the Jackson Laboratory.
Both ARSACS transgenic mouse models, the Sacs Knock Out mouse (# 033221) and the Sacs Knock In R272C mouse (# 033385), are now available for sell on the Jackson Laboratory website www.jax.org. Thanks to the financial support of the Ataxia Charlevoix-Saguenay Foundation, the mice generated and characterized by the ARSACS researcher team demonstrate similarities to the disease found in humans …
A greater collaboration between ARSACS researchers
Over the years, a greater collaboration has developed among ARSACS researchers. See a representation of the network of collaboration produced by Mathieu Blais.
