According to Dr. Luc J. Hébert’s interim report , “it is becoming increasingly clear that in patients with ARSACS, the presence of inappropriate knee cocontractions is a major factor in mobility restrictions.” Dr. Hébert is the researcher responsible for the project “Caractérisation des déficiences musculaires associées aux difficultés à la marche et aux transferts chez des personnes atteintes d’ARSACS ; …
Around the Lac St-Jean on an adapted bike on August 1 &2
Article published in the Quotidien. Nicolas Claveau, affected by ARSACS , has the intention to go around the Lac St Jean on an adapted bike to support the ARSCS research. Good luck Nicolas ! Interesting, right? Share with your friends & followers / Intéressant, non? Partagez avec vos amis:
Next Board meeting on Thursday June 4, 2020.
The next meeting of the Foundation’s Board of directors will be held on Thursday June 4, 2020 ( via Zoom meeting ) . Interesting, right? Share with your friends & followers / Intéressant, non? Partagez avec vos amis:
Thank you for your donations in celebration of Louise’s birthday
Thank you to all of you who celebrated Louise’s birthday by contributing to ARSACS research. Each donation is key to continue research on ARSACS. Interesting, right? Share with your friends & followers / Intéressant, non? Partagez avec vos amis:
Thank you note from Katherine and Steve for supporting ARSACS
A personal thank you note from Katherine Samson et Steve Bourget for your contribution. ( French version only ) Interesting, right? Share with your friends & followers / Intéressant, non? Partagez avec vos amis:
Congratulations! Objective met – $25,000 raised for ARSACS research
Congratulations and thank you to Katherine Samson and her team for this great success! $25,000 raised by selling 5,000 “Ça va bien aller” stickers. A special thank you to Mrs. Louise Lajoie, real estate agent at Remax Saguenay-Lac-Saint-Jean, who played a key role in this fundraising activity. Interesting, right? Share with your friends & followers / Intéressant, non? Partagez avec …
EJP-RD JTC2020 competition maintained even with the COVID-19 pandemic
The Foundation, a financial partner with the Canadian Institutes of Health Research, is pleased to confirm that the “European Joint Programme on Rare Diseases 2020” (EJP-RD JTC2020) competition is moving on according to its original timelines even with the current COVID-19 pandemic. Interesting, right? Share with your friends & followers / Intéressant, non? Partagez avec vos amis:
Thank you for supporting ARSACS research
Thank you to those anonymous donors who celebrated Stephanie’s birthday by giving to the ARSACS research. Interesting, right? Share with your friends & followers / Intéressant, non? Partagez avec vos amis:
The Ataxia Charlevoix-Saguenay Foundation participates in the European Joint Programme on Rare Diseases
The Foundation is proud to announce that it will continue to work with the Canadian Institutes of Health Research and the European Union as part of the European Joint Programme on Rare Diseases 2020. The Foundation will fund $225,000 over a 3-year period for projects on Ataxia Charlevoix-Saguenay. The Canadian investment will be used to fund the participation of Canadian …
Launch of the International ARSACS Patient Registry
If you or a family member has received an ARSACS diagnostic, you are invited to register. It is easy and simple. The registry is available in 4 languages English, French Spanish and in Italian. This is a way for you to support the cause. Interesting, right? Share with your friends & followers / Intéressant, non? Partagez avec vos amis:
