IScience has published an Article on ARSACS in February 2021. Dr. Mohan Babu, supported by the ARSACS Foundation, is one of the researchers who contributed to the research.
Board meeting on Thursday March 18, 2021
A virtual meeting of the Foundation’s Board of Directors will be held on Thursday March 18, 2021.
International Rare Disease Day : February 28th
The first international Rare Disease Day was celebrated in 2008 on February 29th, a rare date which occurs only every 4 years. Since then, the international Rare Disease Day has been held every year on the last day of February. This year, several online activities will be held to raise public awareness of rare diseases. More than 300 million people …
Interested in doing research on ARSACS? Send us your proposal by May 28,2021
As part of it’s mission, the Foundation is funding every year several research projects on ARSACS. If you are interested in contributing with a team of researchers to advance the understanding of the disease and lead to a treatment, please send us your proposal. Your project could receive up to $100,000 for a period of one year with possibility of …
Info sheet on muscles co-contraction in ARSACS patients
As part of the Rare Diseases Day (February 25) organized by GRIMM, Dr. Olivier Audet will present his research findings on muscle co-contractions in ARSACS patients. Infographie (in French only).
Video of Dr. Hébert’s conference on abnormal muscles co-contraction in ARSACS patients
In case you missed it, this is a opportunity to view the virtual conference held on January 21 by Dr. Luc Hébert and Olivier Audet on the abnormal muscles co-contraction in ARSACS patients and possible avenues for interventions. Virtual conference. ( Text of presentation in French only)
The Foundation, a partner in a project funded as part of the European Joint Program Rare Diseases
The Foundation is pleased to announce that it will be representing the ARSACS patients on the research project “Designing a toolbox of paradigmatic treatments for a targeted molecular medicine approach to autosomal-recessive ataxias”. The project has received funding from the European Union’s Horizon 2020 research and innovation programme under the EJP RD COFUND-EJP N° 825575. The specific objective is the …
Celebrating Maryse’s birthday by giving to ARSCS research
Thank you to the donors who celebrated Maryse’s birthday by supporting ARSACS research!
Still an opportunity to participate in the PROSPAX survey. Deadline extended to January 31
There is still an opportunity to complete the PROSPAX survey. The deadline has been extended to Sunday January 31, 2021. So please take five minutes of your time to have your voice heard and be well represented in the research. Thank you very much if you have already completed the survey. It is very appreciated!
Invitation to a free online presentation with Dr. Hébert on Thursday January 21, 2021
Invitation to individuals affected with ARSACS, their caregivers and health professionals to a free online presentation on Thursday January 21, 2021, 1:30pm-2:30pm “Abnormal muscle co-contraction in the lower limbs: a factor limiting the mobility of patients with Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay (ARSACS)”. The research results and avenues for intervention will be presented by Dr. Hébert and Olivier Audet. …
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