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A new “measuring stick” for ARSACS

In Activities by ARSACS

Dr. Cynthia Gagnon, member of the ARSACS research team, has designed with her colleagues a new set of measurements to track the ARSACS symptoms. This new index called DSI-ARSACS will help to better assess how the disease is progressing and will provide the means to compare different groups of patients. There is now a reliable and standardized test, an essential …

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You have an ARSACS research project to submit?

In Activities by ARSACS

This is a special invitation to researchers interested in ARSACS to submit their research proposal by Friday May 22, 2020. A maximum of $100,000 for a period of one year with possibility of renewal for a second year. An application for a specific project could include several labs in Canada or elsewhere. In such a case, the $100,000 limit would …

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Diner des Producteurs 2019 at Télé-Québec

In Activities by ARSACS

The “Diner des Producteurs 2019” will be part of the Télé-Québec TV program “Un Chef à la Cabane” , Friday, February 14 at 8:00 pm. Behind the scene, the preparation of this annual benefit event with guest chef Pierre Gagnaire at work.

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ARSACS Foundation participates in the PROSPAX project

In News Archives by ARSACS

The Foundation is one of the 3 patient advocacy organisations participating in the integrated multimodal progression chart in spastic ataxias project (PROSPAX). Also, Dr. Brais and Dre. Gagnon, ARSACS leader researchers , will be part of this project. The consortium composed of all major European ataxia and spastic paraplegia centers was created to increase the sizes of two disease-specific cohorts …

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ARSACS International Patient Registry

In Activities by ARSACS

Thank you to the individuals who have responded to the email sent requesting to confirm or update their data in the ARSACS Patient Registry. If you did not have a chance to respond yet, please send an email to administrator@arsacs.com to confirm or update your data. It would be greatly appreciated. By being registered, you will be informed of any …