ARSACS Foundation

Who We Are

how we help…

Patients (and/or parents/caregivers)

Tap into their problem of

  • no/little HOPE
  • they feel alone
  • stress of an unknown future how the disease will progress in their case

And how the foundation helps them get what they want:

  • HOPE
  • feel they are not alone
  • know that some research is being done towards a treatment
  • if there is anything they can do to help with their condition (diet, tips, exercise, etc.)

Researchers

Tap into their problem of

  • Limited funds available
  • strong competition for funds
  • Research is a long process before getting a result

And how the foundation helps them get what they want:

  • more funding
  • recognition
  • participation in the studies
  • collaboration
  • to be informed of other related research projects
  • access to tools available for research (mice, etc.)
  • conferences on the subject
  • funded projects by the Foundation ( description, funding ,duration )
  • progress reports and new discoveries
  • statistics on how many patients

General Community

Tap into their problem of

  • never heard of the condition (and its challenges) or medical knowledge – so how can they help?
  • can we trust the foundation? (potential donors)
  • sympathy towards ARSACS patients (general)
  • disappointed if not sharing this important information (Journalist)

And how the foundation helps them get what they want:

  • To learn more about ARSACS (symptoms, challenges, is there a cure, clinical trials, etc.)
  • to know how they can help
  • what’s going on with research and/or patients
  • credibility of the foundation (registered charity, how is it run, board, distribution of funds, etc.)
  • location of research – worldwide (Europe, USA, Canada)

Connect with Other ARSACS Patients

Learn More

New Opportunity

Clinical Trials

ARSACS Foundation is coordinating clicnical trials and needs patients willing to participate.

Researchers and Pharmacies

Apply for Research Funding

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Access Research Tools

mice, etc.

Submit Your Research Reports

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Did you know?

15%

Interesting statistic about ARSACS

Is this your first time hearing about ARSACS?

You’re not alone!

Interesting facts about ARSACS that will entice the general public to want to learn more and engage them to possibly donate, and/or help spread awareness.

ARSACS Foundation

Trusted By Doctors, Researchers & Patients Around the World.

speak to the credibility of the foundation

 

use logos for medical partners (McGill, etc.)??

What does success look like?

There is HOPE

speak to the Foundation’s WHY that will tie in to all 3 audience’s needs.

Latest News

International Rare Disease Day : February 28th

International Rare Disease Day : February 28th

The first international Rare Disease Day was celebrated in 2008 on February 29th, a rare date which occurs only every 4 years. Since then, the international Rare Disease Day has been held every year on the last day of February. This year, several online activities...

Phone

(234) 234-3467

Location

1345 Divi St.
San Francisco, Ca 29456

Email

support@divipharm.com

Something else

M-F: 8am – 5pm
S-S: 9am – 4pm

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