There is Hope Through Research
8th International Symposium on ARSACS
Atlanta, Monday, November 9, 2026
A great opportunity to learn about the latest advancements in ARSACS research. The symposium is a satellite meeting of the 2026 ICAR Conference. This free in-person event
Together, We’re Advancing ARSACS Research — $1 M invested
The Ataxia Charlevoix-Saguenay Foundation is proud to announce a $1 million investment in 11 promising ARSACS research projects for 2026–2027, advancing our mission to deepen understanding of ARSACS and accelerate the development of effective therapies that can improve the lives of individuals and families affected.
We extend our sincere gratitude to the Richardson Trust Fund and the Action for ARSACS Foundation USA (AFA) for their support and valued partnership in jointly funding ARSACS research projects with the Ataxia Charlevoix-Saguenay Foundation. Congratulations to the researchers whose projects have been selected for funding. Your commitment and creativity continue to drive progress in ARSACS research.
Persons with ARSACS
You have been diagnosed with ARSACS, you are not alone. Individuals living with ARSACS are all around the world. There is hope because Research that heals!
Researchers
The Foundation supports ARSACS researchers with funding, tools, and conference support, and seeks partners for preclinical and clinical trials.
Community
The Foundation is supported entirely by private donors and volunteers. We need your support to pursue the mission. Learn different ways you can help!
Latest News
Together, We’re Advancing ARSACS Research — $1M Investment
The Ataxia Charlevoix-Saguenay Foundation is proud to announce an investment of $1 million in 11 promising ARSACS research projects for 2026–2027. This significant commitment advances our shared mission to deepen our understanding of ARSACS and accelerate the...
A United Kingdom Community Comes Together for ARSACS
We are grateful to one amazing family from the United Kingdom and their community for organizing a creative fundraiser in support of ARSACS research. Inspired by their son's ARSACS diagnosis earlier this year, they brought together family, friends, and a local...
Newsletter # 7 – Summer 2026 Edition
In this edition, we highlight a study identifying the clinical, radiological, and genetic characteristics of Japanese patients with ARSACS, as well as Dr. Maltecca’s latest research report, which focused on identifying potential therapeutic compounds to address...
Défi Charlevoix-Saguenay : 250km bicycle challenge
In July, Gabriel Paquet-Desbiens will take on a new challenge as part of the Charlevoix–Saguenay Challenge, which he founded in 2022. His goal is to cycle around Lac Saint-Jean—a distance of 250 km—in no more than three days! Gabriel hopes to raise $3,000 in support...
19th edition – Diner des Producteurs
Under the honorary presidency of Mr. Pierre Miron, Executive Vice-President of iA Groupe financier, the Ataxia Charlevoix-Saguenay Foundation is proud to announce the 19th edition of the Dîner des Producteurs, which will take place on Thursday, November 26, 2026, in...
OdV ARSACS is supporting ARSACS research across Italy.
Once again, OdV ARSACS — a charitable organisation founded in Italy by Susanna Deluca and Dr. Paolo Arrigoni — in collaboration with Fondazione Telethon for the seed grant, is supporting ARSACS research across Italy. Dr. Francesca Maltecca (Vita-Salute San Raffaele...