two international studies to identify biomarkers,
essential data to initiate treatment for ARSACS
are currently funded
by the Foundation
in Canada and abroad
Article published in the Quotidien. Nicolas Claveau, affected by ARSACS , has the intention to go around the Lac St Jean on an adapted bike to support the ARSCS research. Good luck Nicolas !
The next meeting of the Foundation’s Board of directors will be held on Thursday June 4, 2020 ( via Zoom meeting ) .
Thank you to all of you who celebrated Louise’s birthday by contributing to ARSACS research. Each donation is key to continue research on ARSACS.
A personal thank you note from Katherine Samson et Steve Bourget for your contribution. ( French version only )
Congratulations and thank you to Katherine Samson and her team for this great success! $25,000 raised by selling 5,000 “Ça va bien aller” stickers. A special thank you to Mrs. Louise Lajoie, real estate agent at Remax Saguenay-Lac-Saint-Jean, who played a key role in this fundraising activity.
The Foundation, a financial partner with the Canadian Institutes of Health Research, is pleased to confirm that the “European Joint Programme on Rare Diseases 2020” (EJP-RD JTC2020) competition is moving on according to its original timelines even with the current COVID-19 pandemic.
Thank you to those anonymous donors who celebrated Stephanie’s birthday by giving to the ARSACS research.
The Ataxia Charlevoix-Saguenay Foundation participates in the European Joint Programme on Rare Diseases
The Foundation is proud to announce that it will continue to work with the Canadian Institutes of Health Research and the European Union as part of the European Joint Programme on Rare Diseases 2020. The Foundation will fund $225,000 over a 3-year period for projects on Ataxia Charlevoix-Saguenay. The Canadian investment will be used to fund the participation of Canadian researchers in multinational research consortia in areas such as rare diseases.
If you or a family member has received an ARSACS diagnostic, you are invited to register. It is easy and simple.
The registry is available in 4 languages English, French Spanish and in Italian. This is a way for you to support the cause.