Latest News

Launch of the International ARSACS Patient Registry

Launch of the International ARSACS Patient Registry

If you or a family member has received an ARSACS diagnostic, you are invited to register. It is easy and simple.
The registry is available in 4 languages English, French Spanish and in Italian. This is a way for you to support the cause.

Structural Genomics Consortium sending molecules to test on ARSACS

Structural Genomics Consortium sending molecules to test on ARSACS

The Structural Genomics Consortium in Frankfurt will be sending shortly some molecules to the Institute for Research in Immunology and Cancer of the University of Montreal. These molecules will be tested on ARSACS.

Dr.Slaven Erceg

Using Stem Cell Therapies for ARSACS

Dr. Salver Erceg, in Valencia (Spain), explains in a short video how he is using stem cell therapies to investigate in vitro the affected cells in ARSACS patients. This research project is funded by the Foundation.

$1Million raised at the Diner des Producteurs 2018.  Thank you !

$1Million raised at the Diner des Producteurs 2018. Thank you !

Thanks to your generosity, the Foundation can continue to fund research on ARSACS with the aim of developing a treatment for this rare disease. Special thanks to the co-chairs Mrs. Erin Slater Battat and Mr.Joe Battat, chefs, sponsors,donors and all the volunteers. This would not have been possible without you.

World experts at the 5th International Symposium on ARSACS

World experts at the 5th International Symposium on ARSACS

About 50 world expert researchers on ARSACS shared their data and knowledge at the International ARSACS Symposium hosted by the Neuro in Montreal.
Dr. Brais, Neuro’s leading expert on ARSACS, describes why this is an important conference.

Interesting, right? Share with your friends & followers:

Our Annual Fundraiser