Latest News

ARSACS reference article in the GeneReviews updated

ARSACS reference article in the GeneReviews updated

A new version of the ARSACS reference article in the GeneReviews is now available.

The Ataxia Charlevoix-Saguenay Foundation participates in the European Joint Programme on Rare Diseases

The Ataxia Charlevoix-Saguenay Foundation participates in the European Joint Programme on Rare Diseases

The Foundation is proud to announce that it will continue to work with the Canadian Institutes of Health Research and the European Union as part of the European Joint Programme on Rare Diseases 2020. The Foundation will fund $225,000 over a 3-year period for projects on Ataxia Charlevoix-Saguenay.  The Canadian investment  will be used to fund the participation of Canadian researchers in multinational research consortia in areas such as rare diseases.

A great success !  $1.4 Million raised to continue research  on Ataxia of Charlevoix-Saguenay

A great success ! $1.4 Million raised to continue research on Ataxia of Charlevoix-Saguenay

A great success ! $1.4 million net raised for research for Ataxia of Charlevoix-Saguenay at the 13th edition of the Diner des Producteurs . 357 guests attended the annual fundraising event held in Montreal on November 7, 2019. “On behalf of the persons affected with ARSACS and their families, I thank you for your great collective contribution” Jean Groleau, co-founder and president of the Ataxia Charlevoix-Saguenay Foundation. Press Release

ARSACS Donation On Line now available

ARSACS Donation On Line now available

Now you have the option of doing your ARSACS donation on line. An easy, simple and secure way to support the ARSACS research. Help us finding a treatment, Donate.

Dr. Thomas L. Schwarz

Funding Dr. Schwarz’s ARSACS research project

“Is SARM1 a therapeutic target for ARSACS?” another research project funded by the Foundation this year. Dr. Thomas Schwarz is at the Dept of Neurobiology at the Harvard Medical School in Boston.

Another ARSACS research project financed by the Foundation

Another ARSACS research project financed by the Foundation

The Ataxia Charlevoix-Saguenay Foundation is pleased to announce that it will finance Dr. Walid Houry ‘s ARSACS research project “Towards the Structural Determination of Sascsin” for a 2 year period. Dr. Houry is from the University of Toronto.

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Eight major innovative research projects funded for 2019-2020

Eight major innovative research projects funded for 2019-2020

The Ataxia Charlevoix-Saguenay Foundation has received several innovative research proposals again this year. The Foundation would like to thank the applicants for their interest in the Ataxia Charlevoix-Saguenay and for the high quality of their submissions.

8 major projects will be funded for 2019-2020 with the goal of developing a treatment for the Ataxia Charlevoix-Saguenay.

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Launch of the International ARSACS Patient Registry

Launch of the International ARSACS Patient Registry

If you or a family member has received an ARSACS diagnostic, you are invited to register. It is easy and simple.
The registry is available in 4 languages English, French Spanish and in Italian. This is a way for you to support the cause.

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Our Annual Fundraiser