Latest News

Around the Lac St-Jean on an adapted bike on August 1 &2

Around the Lac St-Jean on an adapted bike on August 1 &2

Article published in the Quotidien. Nicolas Claveau, affected by ARSACS , has the intention to go around the Lac St Jean on an adapted bike to support the ARSCS research. Good luck Nicolas !

Next Board meeting on Thursday June 4, 2020.

Next Board meeting on Thursday June 4, 2020.

The next meeting of the Foundation’s Board of directors will be held on Thursday June 4, 2020 ( via Zoom meeting ) .

Thank you for your donations in celebration of  Louise's birthday

Thank you for your donations in celebration of Louise’s birthday

Thank you to all of you who celebrated Louise’s birthday by contributing to ARSACS research. Each donation is key to continue research on ARSACS.

Thank you note from Katherine and Steve for supporting ARSACS

Thank you note from Katherine and Steve for supporting ARSACS

A personal thank you note from Katherine Samson et Steve Bourget for your contribution. ( French version only )

Congratulations! Objective met - $25,000 raised for ARSACS research

Congratulations! Objective met – $25,000 raised for ARSACS research

Congratulations and thank you to Katherine Samson and her team for this great success! $25,000 raised by selling 5,000 “Ça va bien aller” stickers. A special thank you to Mrs. Louise Lajoie, real estate agent at Remax Saguenay-Lac-Saint-Jean, who played a key role in this fundraising activity.

EJP-RD JTC2020 competition maintained even with the COVID-19 pandemic

EJP-RD JTC2020 competition maintained even with the COVID-19 pandemic

The Foundation, a financial partner with the Canadian Institutes of Health Research, is pleased to confirm that the “European Joint Programme on Rare Diseases 2020” (EJP-RD JTC2020) competition is moving on according to its original timelines even with the current COVID-19 pandemic.

Thank you for supporting ARSACS research

Thank you for supporting ARSACS research

Thank you to those anonymous donors who celebrated Stephanie’s birthday by giving to the ARSACS research.

The Ataxia Charlevoix-Saguenay Foundation participates in the European Joint Programme on Rare Diseases

The Ataxia Charlevoix-Saguenay Foundation participates in the European Joint Programme on Rare Diseases

The Foundation is proud to announce that it will continue to work with the Canadian Institutes of Health Research and the European Union as part of the European Joint Programme on Rare Diseases 2020. The Foundation will fund $225,000 over a 3-year period for projects on Ataxia Charlevoix-Saguenay.  The Canadian investment  will be used to fund the participation of Canadian researchers in multinational research consortia in areas such as rare diseases.

Launch of the International ARSACS Patient Registry

Launch of the International ARSACS Patient Registry

If you or a family member has received an ARSACS diagnostic, you are invited to register. It is easy and simple.
The registry is available in 4 languages English, French Spanish and in Italian. This is a way for you to support the cause.

Our Annual Fundraiser