Conferences & Events
Upcoming Conferences and Events
Webinar LIVE - October 2, 2025 at 12:00 PM
For more details click here
World Orphan Drug Congress in Amsterdam, October 27-29, 2025
Conference at WODC Amsterdam – October 28, 2025 at 4:50 PM
A gene therapy approach for ARSACS: insights from preclinical models – Drs. Francesca Maltecca and Daniel Di Ritis
Fireside Chat at WODC Amsterdam – October 29, 2025 at 2:40 PM
ARSACS : Finding Solutions for Rare Disease Patients – Sonia Gobeil and Maxine Monk
Past Conferences and Events
Foundation-Funded Project Featured at ASGCT – May 2025
A research project led by Dr. Benoit Gentil and funded by the Foundation will be presented at the American Society of Gene and Cell Therapy (ASGCT) annual meeting, a key event in the field of gene and cell therapy. The presentation video titled “Ataxia of...
Sonia Gobeil Interview with CheckRare – April 2025
Last April, Sonia Gobeil was interviewed by CheckRare during the World Orphan Drug Congress (WODC). This is a valuable opportunity to raise awareness for ARSACS (Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay) and to highlight the importance of ongoing...
Fireside Chat Session ‘ARSACS (Ataxia Charlevoix-Saguenay): Finding solutions for rare disease patients’ – Boston, April 23, 2025
As part of the World Orphan Drug Congress, this session was led by Sonia Gobeil (co-founder), Betsy Trainor (board member), and Dr. Jeremy Schmahmann.
Conference ‘Development of a gene therapy for Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay; challenges and success’ – Boston, April 22, 2025
As part of the World Orphan Drug Congress, this conference was presented by Alexandre Paré (McGill PhD student).
World Orphan Drug Congress in Boston, April 22-24, 2025
This congress provided a forum to discuss and advance orphan drug development and to enhance access to life-saving therapies for individuals living with a rare disease. The Foundation was proud to participate and contribute to raising awareness about ARSACS and the...
Webinar ‘Research and Treatment Development for ARSACS’ – February 28, 2025
This webinar, hosted by Dr. Justin Wolter, was part of the National Ataxia Foundation’s (NAF) educational series on Ataxia, featuring leading experts in the field. View all NAF past webinars
Webinar ‘All about ARSACS’Webinar ‘Présentation d’un projet de recherche sur l’ARSACS : un modèle collaboratif’
February 14th 2025 - This webinar was presented by Sonia Gobeil (co-founder) and Dr. Benoit Gentil as part of the month of 'Zébrier 2025', organized by the Regroupement québécois des maladies orphelines. View here
Webinar ‘All about ARSACS’
February 13, 2025 - This webinar, hosted by Dr. Nicolas Dupré and Dr. Élise Duchesne, was part of the National Ataxia Foundation’s (NAF) educational series on Ataxia, featuring leading experts in the field. View all NAF past webinars
The 6th International Symposium on ARSACS – A success!
More than 200 participants from different backgrounds (academic, pharmaceutical and people with ARSACS) participated in the Symposium. An international network of ARSACS researchers who shared their research progress in a climate of collaboration and exchange of...
Canadian Society of Molecular Biosciences conference
A virtual conference to be held on June 14-17, 2021. This scientific conference has relevance to ARSACS. The theme is protein homeostasis, or proteostasis, which include the systems for production and folding of proteins, and the quality control repair and degradation...
ARSACS research results presented at the 31st International Symposium on ALS/MND
Dr. Gentil and Dr. Durham presented the results of their team's ARSACS research at the 31st International Symposium on ALS/MND. The research, funded by the Foundation, was the work of Afrooz Dabbaghizadeh and Alexandre Paré.31st International Symposium on ALS/MND-...
Info sheet on muscles co-contraction in ARSACS patients
As part of the Rare Diseases Day (February 25) organized by GRIMM, Dr. Olivier Audet will present his research findings on muscle co-contractions in ARSACS patients. Infographie (in French only).
Video of Dr. Hébert’s conference on abnormal muscles co-contraction in ARSACS patients
In case you missed it, this is a opportunity to view the virtual conference held on January 21 by Dr. Luc Hébert and Olivier Audet on the abnormal muscles co-contraction in ARSACS patients and possible avenues for interventions. Virtual conference. ( Text of...
Invitation to a free online presentation with Dr. Hébert on Thursday January 21, 2021
Invitation to individuals affected with ARSACS, their caregivers and health professionals to a free online presentation on Thursday January 21, 2021, 1:30pm-2:30pm “Abnormal muscle co-contraction in the lower limbs: a factor limiting the mobility of patients with...
Invitation to a free online presentation with Dr. Gentil on November 5th
Special invitation to individuals affected with ARSACS, their caregivers and health professionals to a free online presentation on November 5th, 2020. Dr. Gentil will present in layman's terms his research project « Research on Gene and Replacement Therapies to Treat...
Invitation to the virtual conference “L’Odyssée thérapeutique des maladies rares”
"Comment le patient peut-il, du diagnostic à l’innovation, faciliter son odyssée thérapeutique?" Invitation to all. Note that the free visioconference, organized by the Centre de recherche Centre Hospitalier Université de Montréal and les Hospices Civils de Lyon, is...
Dr. Brais at the 6th International Meeting on Spastic Paraparesis and Ataxia
Dr. Brais will be presenting "New insights on ARSACS lead to a search for candidate compounds" at the 6th International Meeting on Spastic Paraparesis and Ataxia on September 20-21 2019 in Nice, France. The program includes plenary talks from leaders in the field of...
Dr. Cynthia Gagnon, member of the ARSACS research team, at the International Ataxia Research Conference
Dr. Cynthia Gagnon will be presenting on the Natural History, Biomarkers and Endpoints for ARSACS at the November 2019 International Ataxia Research Conference in Washington, DC
Invitation to discover the « New insights into cerebellar disorders »
Opportunity to meet Dr. Esther Becker from University of Oxford guest speaker at the NeuroForum 2019 conference and find out the «New insights into cerebellar disorders». The conference, organised by the Axe NeuroSciences, Centre de Recherche du CHU de Québec, will be...
Invitation to the 5th ARSACS Symposium
Fifth International Symposium on ARSACS on October 31-November 1,2018 in Montreal. Special Invitation from Dr. Brais. Website Registration by October 1st.
Dre Gagnon at the International Ataxia Research Conference
Dr. Cynthia Gagnon with her PHD student Mrs. Isabelle Lessard presented at the International Ataxia Research conference held on September 27-30, 2017 in Pisa, Italy. The focus of the conference was a comprehensive scientific review of new research from disease...
Dr. Matthis Synofzik to present at the 2nd International Ataxia Research Conference.
Dr. Matthis Synofzik, a researcher at the University of Tuebingen funded by the ARSACS Foundation, will present his research results at the 2nd International Ataxia Conference in Pisa. His research deals with dyphrasia...
Fourth International Symposium on ARSACS
Several researchers from different countries participated in the 4th Symposium on ARSACS held on November 10 &11 at the Neuro in Montreal. This conference provided an opportunity for researchers to share their knowledge and to discuss the progress of their...
Third International Symposium on ARSACS
December 26, 2014 - On November 12th and 13th,2014, The Montreal Neurological Institute and Hospital hosted the 3rd International Symposium focusing on advances in understanding ARSACS (Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay) in the larger context...
International Symposium on ARSACS in 2011
As part of the congress organised by the International Federation of Human Genetcis Societies held on October 11 2011 in Montréal, there was an international symposium on ARSACS organised by Dr. Brais on October 17. In fact, 35 researchers attended the International...