by ARSACS | Nov 26, 2020 | News Archives
As part of its mission, the Foundation is pleased to fund Dr. Walid Houry’s ARSACS research project “Towards the Structural Determination of Sacsin”. This project is in addition to the other seven projects already funded for 2020-2021 .
by ARSACS | Nov 17, 2020 | News Archives
Dr. Gentil’s virtual conference «La recherche de thérapies géniques et de complémentation dans le traitement de l’ARSACS » French session on Thursday Nov 19 at 1:30pm.
by ARSACS | Nov 10, 2020 | News Archives
The next virtual meeting of the Foundation Board of Directors will be on Wednesday December 2, 2020.
by ARSACS | Nov 2, 2020 | News Archives
Dr. Gentil’s virtual conference « Research on Gene and Replacement Therapies to Treat ARSACS». Register in advance.
by ARSACS | Oct 31, 2020 | News Archives
As part of it mission to develop a treatment for ARSACS, the Foundation is pleased to announce the research projects to be funded in 2020-2021. Over $700K, including a $50K contribution from the Richardson Fund (University of Saskatchewan), will be allocated to these...
by ARSACS | Oct 13, 2020 | News Archives
An excellent source of information on ARSACS published in the GeneReviews. GeneReviews is an online database containing peer-reviewed articles that describe specific diseases. It was established in 1997 by the University of Washington in the US.
by ARSACS | Aug 3, 2020 | News Archives
According to Dr. Luc J. Hébert’s interim report , “it is becoming increasingly clear that in patients with ARSACS, the presence of inappropriate knee cocontractions is a major factor in mobility restrictions.” Dr. Hébert is the researcher responsible...
by ARSACS | Jul 13, 2020 | News Archives
Article published in the Quotidien. Nicolas Claveau, affected by ARSACS , has the intention to go around the Lac St Jean on an adapted bike to support the ARSCS research. Good luck Nicolas !
by ARSACS | Jun 3, 2020 | News Archives
The next meeting of the Foundation’s Board of directors will be held on Thursday June 4, 2020 ( via Zoom meeting ) .
by ARSACS | Jun 2, 2020 | News Archives
Thank you to all of you who celebrated Louise’s birthday by contributing to ARSACS research. Each donation is key to continue research on ARSACS.
by ARSACS | Apr 20, 2020 | News Archives
A personal thank you note from Katherine Samson et Steve Bourget for your contribution. ( French version only )
by ARSACS | Apr 17, 2020 | News Archives
Congratulations and thank you to Katherine Samson and her team for this great success! $25,000 raised by selling 5,000 “Ça va bien aller” stickers. A special thank you to Mrs. Louise Lajoie, real estate agent at Remax Saguenay-Lac-Saint-Jean, who played a key role in...
by ARSACS | Apr 9, 2020 | News Archives
The Foundation, a financial partner with the Canadian Institutes of Health Research, is pleased to confirm that the “European Joint Programme on Rare Diseases 2020” (EJP-RD JTC2020) competition is moving on according to its original timelines even with the...
by ARSACS | Apr 7, 2020 | News Archives
Special thanks to the team: Katherine, Steve, Nadine, a real estate agent from Lac St-Jean, Pro-Style Lettrage company and the supporters who have purchased their sticker. Lets continue to encourage Katherine to reach the objective of 5000 stickers. Help us by...
by ARSACS | Apr 3, 2020 | News Archives
Thank you to those anonymous donors who celebrated Stephanie’s birthday by giving to the ARSACS research.
by ARSACS | Mar 30, 2020 | News Archives
Congratulations to Katherine Samson, mother of two children with ARSACS, for her great initiative! More than 400 stickers “Ça va bien aller” sold already to finance ARSACS research. You can order your $5 sticker via Katherine’s Facebook page. Thanks to Katherine...
by ARSACS | Mar 20, 2020 | News Archives
Patients from 21 different countries are registered in the International ARSACS Patient Registry. ARSACS is around the world. See map of the country of the registered patients.
by ARSACS | Mar 17, 2020 | News Archives
The Diner des Producteurs, annual fundraising event for ARSACS research, will be held in Montreal on Thursday, November 5, 2020. Reserve the date.
by ARSACS | Mar 14, 2020 | News Archives
The Foundation would like to thank all anonymous donors who celebrated Rachelle’s birthday with a donation to support ARSACS research.
by ARSACS | Mar 12, 2020 | News Archives
The next meeting of the Foundation’s Board of Directors will be held in Montreal on Thursday June 4, 2020.
