by ARSACS | Mar 11, 2020 | News Archives
A researcher at UNC Catalyst for Rare Diseases presents her project “Characterization TAU phosphorylation in ARSACS using a Sacsin KO model”
by ARSACS | Feb 17, 2020 | News Archives
Dr. Cynthia Gagnon, member of the ARSACS research team, has designed with her colleagues a new set of measurements to track the ARSACS symptoms. This new index called DSI-ARSACS will help to better assess how the disease is progressing and will provide the means to...
by ARSACS | Feb 13, 2020 | News Archives
This is a special invitation to researchers interested in ARSACS to submit their research proposal by Friday May 22, 2020. A maximum of $100,000 for a period of one year with possibility of renewal for a second year. An application for a specific project could include...
by ARSACS | Feb 10, 2020 | News Archives
The “Diner des Producteurs 2019” will be part of the Télé-Québec TV program “Un Chef à la Cabane” , Friday, February 14 at 8:00 pm. Behind the scene, the preparation of this annual benefit event with guest chef Pierre Gagnaire at...
by ARSACS | Jan 27, 2020 | News Archives
Thank you to the individuals who have responded to the email sent requesting to confirm or update their data in the ARSACS Patient Registry. If you did not have a chance to respond yet, please send an email to administrator@arsacs.com to confirm or update your data....
by ARSACS | Jan 9, 2020 | News Archives
A new version of the ARSACS reference article in the GeneReviews is now available.
by ARSACS | Jan 6, 2020 | News Archives
The Foundation is proud to announce that it will continue to work with the Canadian Institutes of Health Research and the European Union as part of the European Joint Programme on Rare Diseases 2020. The Foundation will fund $225,000 over a 3-year period for projects...
by ARSACS | Dec 18, 2019 | News Archives
A great success ! $1.4 million net raised for research for Ataxia of Charlevoix-Saguenay at the 13th edition of the Diner des Producteurs . 357 guests attended the annual fundraising event held in Montreal on November 7, 2019. “On behalf of the persons affected...
by ARSACS | Nov 29, 2019 | News Archives
Now you have the option of doing your ARSACS donation on line. An easy, simple and secure way to support the ARSACS research. Help us finding a treatment, Donate.
by ARSACS | Nov 26, 2019 | News Archives
“Is SARM1 a therapeutic target for ARSACS?” another research project funded by the Foundation this year. Dr. Thomas Schwarz is at the Dept of Neurobiology at the Harvard Medical School in Boston.
by ARSACS | Oct 3, 2019 | News Archives
The Ataxia Charlevoix-Saguenay Foundation is pleased to announce that it will finance Dr. Walid Houry ‘s ARSACS research project “Towards the Structural Determination of Sascsin” for a 2 year period. Dr. Houry is from the University of...
by ARSACS | Sep 30, 2019 | News Archives
On the occasion of World Ataxia Day on September 25, the ARSACS Organizzatione Di VoLontariato (ARSACS ODV) launched a fundraising campaign in Europe to help finance ARSACS research projects. The organisation of volunteers, created in December 2018 in...
by ARSACS | Sep 7, 2019 | News Archives
The Ataxia Charlevoix-Saguenay Foundation has received several innovative research proposals again this year. The Foundation would like to thank the applicants for their interest in the Ataxia Charlevoix-Saguenay and for the high quality of their submissions. 8 major...
by ARSACS | Aug 15, 2019 | News Archives
Both ARSACS transgenic mouse models, the Sacs Knock Out mouse (# 033221) and the Sacs Knock In R272C mouse (# 033385), are now available for sell on the Jackson Laboratory website www.jax.org. Thanks to the financial support of the Ataxia Charlevoix-Saguenay...
by ARSACS | Aug 13, 2019 | News Archives
Over the years, a greater collaboration has developed among ARSACS researchers. See a representation of the network of collaboration produced by Mathieu Blais.
by ARSACS | Aug 7, 2019 | News Archives
As part of its going research program, the Foundation is pleased to announce that it will fund 12 research projects in 2019-2020. Details to come .
by ARSACS | Jul 5, 2019 | News Archives
The Ataxia Charlevoix-Saguenay Foundation cordially invites you to its annual fundraising Le Diner des Producteurs (13th edition) under the honorary presidency of Mr. Jacques Foisy, Chairman of the Board and Managing Partner, Novacap. Invitation.
by ARSACS | Jun 25, 2019 | News Archives
On June 11th, thanks to Manon Valiquette, Sonia Gobeil representing the Foundation had the pleasure of visiting the Institute for Research in Immunology and Cancer (IRCI) in Montreal and discovering extraordinary people who are very passionate about their work. Their...
by ARSACS | Jun 14, 2019 | News Archives
The acronym “ARSACS” enters the life of Susanna de Luca and Paolo Arrigoni when their young child was diagnosed with ARSACS. Paolo joined the Board of Directors of the Ataxia Charlevoix-Saguenay Foundation in 2018 and, after having participated in the...
by ARSACS | Jun 11, 2019 | News Archives, Past Conferences
Dr. Brais will be presenting “New insights on ARSACS lead to a search for candidate compounds” at the 6th International Meeting on Spastic Paraparesis and Ataxia on September 20-21 2019 in Nice, France. The program includes plenary talks from leaders in...
