by ARSACS | Oct 12, 2018 | News Archives
The 5th ARSACS Symposium is very soon. AGENDA for the 2 days. The public is invented to meet the ARSACS researchers on Wednesday October 31 at 4:30. Come and join us!
by ARSACS | Oct 3, 2018 | News Archives
“From motor performance to participation: a quantitative descriptive study in adults with autosomal recessive spastic ataxia of Charlevoix-Saguenay” a study which evaluates the motor performance of individuals with ARSACS, was published in the Orphanet...
by ARSACS | Oct 1, 2018 | News Archives
The 5th International Symposium on ARSACS will be held in Montreal on October 31st. The agenda will be posted on the website over the next few days. For the first time, the public is invited to attend. The guest speakers at the Symposium will present their research in...
by ARSACS | Sep 27, 2018 | News Archives
The study “Sacsin, mutated in ataxia ARSACS, regulates intermediate filament assembly and dynamics” will be published in the Federation of American Societies for Experimental Biology Journal (FASEBJ). “For the time being, this is a very interesting...
by ARSACS | Sep 14, 2018 | News Archives
Dr. Cynthia Gagnon and her team studied the decline of upper and lower limb functions in adults with ARSACS over a 2 year period. The study has been published in the Neurology Journal in August 2018.
by ARSACS | Sep 3, 2018 | News Archives
The research article of Dr. Anne McKinney and Dr. Alanna Watt entitled “Altered synaptic and firing properties of cerebellar Purkinje cells in a mouse model of ARSACS” has been published in the latest issue of the Journal of Physiology. See article
by ARSACS | Aug 31, 2018 | News Archives
“Become an advocate, become involved, share advice, tell your story so that other parents with children with neurodegenerative disorders can learn from it. Above all, do not ever give up hope”. Interview with Mrs Brandi Brown, mother of a daughter with...
by ARSACS | Aug 23, 2018 | News Archives
The Foundation will fund Dr. Brais’ second research project for an amount of $80,000 in 2018-2019. The aims of the project “Integrated Validation Pipeline for Candidate Drugs for ARSACS” are to validate candidate compounds in neurons and to combine...
by ARSACS | Aug 21, 2018 | News Archives
You live outside Canada and you wish to support research on ARSACS but you do not know how? It is easy. Just send by mail a cheque in your local currency to the Ataxia Charlevoix-Saguenay Foundation, 1000 Sherbrooke O, bureau 2100, Montreal QC H3A 3G4. Thank you for...
by ARSACS | Aug 15, 2018 | News Archives
The Foundation site is now connected to social media. Follow us and share the news with your friends & followers via Twitter or Facebook.
by ARSACS | Jul 27, 2018 | News Archives
16 researchers will share close to $1M in funding this year to pursue research on ARSACS. A total of 12 research projects have been selected by the Foundation for 2018-2019 with the goal of finding a treatment for ARSACS. The Foundation would like to thank all the...
by ARSACS | Jul 12, 2018 | News Archives
Good news! The ARSACS research project “A comprehensive study of the natural history of ARSACS: An essential step towards clinical trial readiness and evidence-based interventions”. was selected by the Canadian Institutes of Health Research (CIHR)and gets...
by ARSACS | Jul 6, 2018 | News Archives
First in-depth study on the characteristics of speech and swallowing in ARSACS, highlighting the impact of these deficits for ARSACS. This research is conducted by Dr. Vogel and Dr. Synofzik from the Centre for Neurology and Hertie-Institute for Clinical Brain...
by ARSACS | Jul 4, 2018 | News Archives, Past Conferences
Fifth International Symposium on ARSACS on October 31-November 1,2018 in Montreal. Special Invitation from Dr. Brais. Website Registration by October 1st.
by ARSACS | Jun 4, 2018 | News Archives
“By officially grouping all ARSACS patients by age, sex, and especially geographic location, the foundation believes that large companies like Pfizer or Bayer will be more inclined to test new drugs.” . Article by Pierre-Alexandre Maltais, Journal de...
by ARSACS | Jun 1, 2018 | News Archives
The IRIC HTS platform completed a screen of 16 000 molecules on a cell line engineered by Dr Brais’ team showing the characteristic vimentin bundling of ARSACS. This led to the identification of a set of potential candidate compounds, of which the two most promising...
by ARSACS | May 8, 2018 | News Archives
The Ataxia Charlevoix-Saguenay cordially invites you to “Le Diner des Producteurs” on November 1, 2018. Reserve you table now .
by ARSACS | May 5, 2018 | News Archives
Many thanks to the Club Richelieu for supporting the ARSACS research. On behalf of the Foundation, Mrs Nicole Fortin, a mother of a child affected by ARSACS and a volunteer at the Foundation, accepted a cheque of $1000 presented by Mr. Jean-François Dallaire,...
by ARSACS | Apr 24, 2018 | News Archives
After serious reflection, the ARSACS Foundation is of the view that there is a need for an overall ARSACS patient registry. Such registry will be on an international basis and will include individuals diagnosed with ARSACS regardless of their country of residence. In...
by ARSACS | Apr 17, 2018 | News Archives
The Foundation is pleased to announce that Dr. Paolo Arrigoni has joined the Foundation’s Board of Directors. With his experience, Dr. Arrigoni will bring an European perspective at the Board.
