by ARSACS | Mar 24, 2025 | Latest News
by ARSACS | Mar 11, 2025 | Latest News
Stay updated on the latest ARSACS research advancements, our recent events, and upcoming initiatives to drive progress. Read it now
by ARSACS | Mar 4, 2025 | Latest News
The scientific article titled ‘Whole Blood DNA Methylation Analysis Reveals Epigenetic Changes Associated with ARSACS’, by Dr. Daniele Galatolo and his team, was published in The Cerebellum in January 2025. Read the article
by ARSACS | Feb 26, 2025 | Latest News
Discover the journey of Betsy Trainor, board member of the Ataxia Charlevoix-Saguenay Foundation, and her commitment to research. Thanks to the Foundation’s funding, Dr. Schmahmann is studying an FDA-approved drug to assess its potential for ARSACS. Read the...
by ARSACS | Feb 17, 2025 | Latest News
A Charity Ball will be held on October 11, 2025, in the UK, in support to ARSACS research. Stay tuned for more details! For inquiries, contact Maxine Monks : max1436@googlemail.com
by ARSACS | Feb 11, 2025 | Latest News
by ARSACS | Feb 7, 2025 | Latest News
Discover the latest scientific developments on ARSACS, as well as our participation in upcoming webinars and conferences. Read it now
by ARSACS | Feb 3, 2025 | Latest News
All About ARSACS Research and Treatment Development for...
by ARSACS | Jan 27, 2025 | Latest News
The Ataxia Charlevoix-Saguenay Foundation is thrilled to welcome Mrs. Catherine Groleau to its Board of Directors. Her extensive expertise and dedication will be invaluable in advancing the Foundation’s mission.
by ARSACS | Jan 6, 2025 | Latest News
by ARSACS | Dec 2, 2024 | Latest News
Thanks to your incredible generosity, this year’s Dîner des Producteurs raised a record-breaking amount of $1.5 million to support research. A huge thank you to: Our honorary chairs, Mr. Bigras and Ms. Lafleur, for their inspiring leadership. Our generous...
by ARSACS | Nov 20, 2024 | Latest News
Be among the first to explore this new way of supporting our cause while securing exclusive and unforgettable items. This initiative is part of our Dîner des producteurs, taking place on November 28, 2024, under the honorary presidency of Mr. Claude Bigras and Ms....
by ARSACS | Oct 25, 2024 | Latest News
A Gene Therapy project receives $1.14M from the Canadian Institutes of Heath Research (CIHR). The project will be led by Dr. Carl Ernst from the Neuro in Montreal. Sonia Gobeil, co-founder of the Ataxia Charlevoix- Saguenay Foundation, will provide the family...
by ARSACS | Oct 21, 2024 | Latest News
The Charlevoix-Saguenay Ataxia Foundation is honored to receive a donation of $340,000 from the Richardson Research Trust. We extend our sincere gratitude to Mr. Lawrence and Mrs. Lucille Richardson for their generosity, which plays a vital role in driving our mission...
by ARSACS | Oct 8, 2024 | Latest News
The Ataxie Charlevoix-Saguenay Foundation is pleased to announce the arrival of Ms. Marie-Eve Duguay as Director. With her extensive experience in the healthcare field, Marie-Eve will oversee operations while developing strategic partnerships and optimizing internal...
by ARSACS | Sep 18, 2024 | Latest News
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by ARSACS | Sep 1, 2024 | Latest News
The Ataxia Charlevoix -Saguenay Foundation is pleased to announce the funding of 10 innovative research projects in 2024-2025. This is an investment of $850,000 aimed to understand the underlying causes of ARSACS and to develop effective treatments. Congratulations...
by ARSACS | Aug 21, 2024 | Latest News
An International Ataxia Day conference will be held in Portugal on September 25, 2024. This event is organized by Mr. Carlos Neves, Portuguese Association of Hereditary Ataxias and Mrs. Susana Reis, Podcast Ataxia e Agora. Dr. Federico Herrera, member of the ARSACS...
by ARSACS | Aug 18, 2024 | Latest News
Sonia Gobeil (Co-founder of the Ataxia Charlevoix-Saguenay Foundation) and Betsy Trainor (Board member of the Foundation) will be part of the Patient and Advocacy Panel at the Genetic Counsellors Conference in Quebec City, September 25-28, 2024. The complex journeys...